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Showing posts with label child. Show all posts
Showing posts with label child. Show all posts

Saturday, February 28, 2015

Stimming-What is it?

This is a really short simple blog post.

Well the definition of it is...

According  to the urban dictionary:
"Stim, stims or stimming is short for "self stimulation". Almost everyone does it(tapping feet, cracking knuckles, twiddling thumbs), but in autistic people these behaviors are more pronounced and may seem downright strange. Autistic people often engage in stimming when they are stressed, to self regulate and sometimes to express emotion.

Common autistic stims are: rocking back and forth, headbanging(not the music kind), finger flicking/rippling, spinning, humming, repeating words or sounds and complex body contortions.

Good music makes me stim a lot. Stimming shouldn't be discouraged, it's a means for me to understand my environment."

What does it look like?

For different people it can look like different things.

For me it could look like any one of these:


  • Foot bouncing 
  • Leg bouncing 
  • Foot rocking  (heel on ground and foot swaying back and forth) 
  • Rubbing tips of finger together 
  • Pressing or tapping tips of finger together 
  • Rubbing finger nail with tip of finger slow or fast like flicking
  • Rubbing legs with my hand
  • Pressure on legs or arms
  • Playing with my necklace in all kinds of ways. Like moving the pendent back and forth across the chain. Putting it in my mouth between teeth or placing my lips in the open part of the puzzle. Rubbing the necklace across my lips.
  • Rubbing my cheek with a finger or scarf or other clothing or blanket.
  • Putting hair or clothing in front of my nose and mouth. 
  • Until I was 10 I sucked my thumb.
  • Making figure eights with my feet together. Heel of one foot comes between heel and front of other foot and then other and over and over it goes.
  • I don't often chew gum because it becomes really hard to stop and I tend to do it not so quietly. 
  • Scratching. 
  • Tightening and loosening individual muscles. 
  • Scrunching up toes then straightening out.
  • If I am wearing a ponytail holder on my wrist, pulling it back and releasing it. 
  • Pulling on my ear lobes.
  • Rubbing on my ear lobes
  • Finger tapping 
  • Finger twitching 
  • Hand flapping 
  • Jumping up and down
  • Letting out a sound(sound varies)
  • Rubbing tongue on teeth
  • Rubbing tongue on roof of mouth
  • Rubbing nose
  • Humming
  • Humming not a tune but a single low sound
  • Singing
  • Spinning my wedding band
  • Petting Midnight our cat
  • Twirling finger around Midnight's ear
  • Tip toe walking
  • I always climb stairs on my tip toes
  • Pacing when talking on the phone-I am talking miles of steps when it is a long conversation
  • Baths


For Josiah it can look like any of these:

  • Head butting floor or wall
  • Ticking his tongue
  • Smacking his lips
  • Biting his hand
  • Biting his clothes
  • Chewing on a chewy
  • Playing with his nose
  • He used to pull at his eye lashes
  • Petting Midnight our cat
  • Playing with Midnight's fur between his fingers
  • Tip toe walking
  • Pinching himself
  • Spinning around
  • Walking in circles
  • Hiding under the couch cushion
  • Hiding in pile of stuffed animals
  • Throwing himself backwards
  • Chewing on the palms of his hand
  • Climbing up or on things
  • Jumping off of things
  • He also fancies using elevators and escalator 
  • Licking glass
  • Rubbing his forehead down glass
  • Jumping on trampoline
  • Running around nearly naked or naked
  • Swimming or bath-swimming wins for best
  • Tongue sticking out
  • Licking bottom lip-sometimes to chapped
  • Lining things up
  • Toe sucking
Some of the major ways we stim differently is I do not actually cause harm to myself when stimming and mine are usually less noticeable then when he does it.


Monday, October 20, 2014

An Endeavor Well Worth It

One early Saturday morning or late Friday night depending on how you wanted to look at it was when we called our friends and family to come and join us. Music played in the background while we talked about all kinds of things and patiently waited for the big moment. We all watched the sunrise, through the window of the medium sized room that we sat in. Everyone was excited, but also calm and relaxed. My husband, mother, sister, closest friend, and sister-in-law were all there beside me the whole time and for a short time my brother-in-law and my sister’s friend even stopped by. After what seemed like forever on that beautiful Saturday morning, July 9th, 2011, my life changed forever when I gave birth to a five pounds ten once boy. It was great to finally have him in my arms. The problem free pregnancy (besides him being born a month early) and easy, pain free, natural labor was sadly not a sign of what was to come next.

The first week of his life he was healthy. He didn’t have to go to the NICU or even have jaundice. However, one thing after another happened after that. We first encountered projectile vomiting almost every time he ate. We tried multiple medicines for acid reflux and nothing worked. He was tested by ultrasound for pyloric stenosis, a stomach condition that requires surgery or death. My tiny baby was not allowed to eat, which was heartbreaking. He was laid on a regular sized bed which made him seem smaller. Then the tech used the smallest tool for the ultrasound which engulfed his abdominal area. They decided after testing that had a dairy intolerance. I cut dairy out of my diet and he got better. By the time he was four months he started to have difficulties breastfeeding and had even more problems with a bottle. This was a very painful time emotionally and physically for me. I endured toe curling pain for my child. We soon learned the issue was caused by a tongue tie and lip tie. It took until he was six months to get them clipped. There were no immediate changes and since he had no weight gain while waiting to get them clipped and weight loss after we were referred for feeding therapy. I continued my classes again when he was six months old, so doing feeding therapy and my classes was a lot for those three months. I learned to manage my time well. When he turned eleven months he was old enough to have his hypospadias surgery that fixed the deformation of his penis. During the surgery I paced anxiously. Two hours later the urologist came and got us. He said everything went well. I had roommates who criticized me for putting him through surgery and for getting his partial foreskin hood removed, but I pushed through as I knew what was best for him. We celebrated his first year and we hoped for better years to come.

Even through all of the pain and suffering that we endured as a family, my husband and I would never trade it for not having had him. Soon after his first birthday, we were still having acid reflux issues and added to that an aspiration issue when drinking liquids. This was discovered, though an x-ray which they strapped him down and he screamed and I could not help him because he needed the test. We had to get drink thickeners, it was really expensive, but for the safety of my child the sacrifice was made. He had leg x-rays, which again he screamed with, when he finally started walking at 16 months because he was walking with a strange gate. Thankfully nothing was wrong. I joked with my son that he was not allowed to have anything else to go wrong because mommy wanted a break from medical exams. My heart broke when he had to go through all of it and I knew he hated it, too. I started to notice social and emotional differences in him before he turned a year old and I just assumed it was because he was born early. When he was eighteen months we made an appointment at Hope Network Center for Autism. This started us on a whole new journey that began two months later.

The biggest life changing thing that happened to me besides having a child, was hearing that he has autism and that it would be a lifelong disability with a varying possibilities of functioning. It was not a life changer in that my son changed. He was the same child that I wanted so badly after I had a miscarriage and he was the child I loved and wanted so much after he was born and the child I still wanted when we went through all the difficulties his first two years of life. It was an internal emotional change that happened. I went through a time when I grieved for the loss of what my child may have become. When you have a child, you have all these hopes and dreams of who they may become and what they may do and then you hear that it might not happen; that they might not get to do all that you dreamed or hoped for, it crushes you. Not because they made the choice, but because they have a lifelong disability that prevents them from making that decision. After I went through the process I came to the wonderful side of acceptance. I loved and accepted him for who he was now, not who he might become someday, or the growth he might or might not make. I accepted him for exactly as God made him. I accepted him for all of his difficulties, not knowing what his strengths might be someday. I loved him and still wanted him. He was completely mine and I would not want to trade him or get rid of him, he was still what I wanted.

Having a child with autism was one of the most meaningful and special things that has happened in my life. My life may not be the easiest, but we all have struggles; No matter if you have a child who has a disability or a child that doesn’t, whether you go to school, go to work, work as a stay at home parent they all have their challenges, different challenges, but they still have their challenges. In some people’s eyes, I was seen as a super mom for all I had done, but with my own eyes I had not always seen it. I did what was needed to help my son function daily and strived to get school work and house work done. Having a child with autism uncovered a whole new part of me. It first started with my ability to stand up for my son and what he needed. The road to getting his diagnoses of autism was not quick and easy we were told by early on they would not diagnose him because he was not old enough. His pediatrician was thankfully not of that same mindset. I learned to stick up for the fact that what was happening was not just a tantrum or that he was in any way spoiled, but that he was having a sensory overload meltdown. This in return taught me to stick up for myself, my parenting and other choices in my life. Through learning how to stand up for myself and my son and what was best for him and our family I had many friends recommend that I should share our story of that and swimming to help inspire others in many ways. Inspire them to fight for the diagnoses, to fight for their child’s needs (a child with autism has sensory needs along with the normal needs) to educate themselves on their child’s needs because with understanding comes patients, which was another thing that I learned from my son, to find what helps meet their child’s sensory needs and what helps to stimulate them in a good way and what over stimulates them, and to just otherwise show that they are not alone and you can fully love and accept your child with autism.

I took the advice of my friends and created a blog titled Just Josiah J. -Autism Adventures (this blog). It started simply enough by being shared with friends and family. I started talking about our adventures in swimming and then branched out to talking more about autism as well as myself. The blog has now had close to 9,500 views. Shortly after I started the blog, I found it would be easier to share it with strangers who wanted to know more about swimming and autism if I created a Facebook page this would also let everyone know there were new blog posts. I was able to use the page to share little updates and pictures from when we went swimming and other adventures we went on. The page started out small with just mainly friends and family and it has grown to nearly 2,000 people. I had gotten comments about how the page or blog has helped others learn what autism was and gave them understanding and acceptance of those with autism and from other parents who I had helped in many ways. About a year later I created a local support group because the Grand Rapids area did not have a parent group online. This had helped nearly two hundred fifty moms and dads, we had just recently expanded the group to not just moms, but dads too. I was glad that I stepped out of my comfort zone and created the local support group because I got comments all the time about how helpful it had been to just be able to talk to other parents and get ideas on how to deal with different behaviors.

The best gift of all of from this whole journey, besides having a wonderful son and getting to help many people, was that I discovered even more about myself. I discovered through my walk through the world of autism that I was on the autism spectrum, too. It answered so many questions to why I thought differently and why my senses were a lot different from other people. When I found out it was an ah ha moment and was such a relief to know what makes me the way I was. I was glad to have gotten a better understanding of myself and my son. Not a perfect understanding because each person with autism is as different from each other, as each person who does not have autism is from each other.

Monday, March 31, 2014

What Do I Need to Know about IEPs?-Information on IEPs Inside

(Information from a book geared toward teatchers, but has lots of information)

Individualized Education Program 

IEP is “the heart of IDEA” and “the make or break component of FAPE for every child with a disability” (Bateman & Herr, 2006, p. 10). IDEA requires that educators develop and implement an IEP for each student with disabilities between the ages of 3 and 21. (Educators develop an  individualized family service plan [IFSP] for each infant and toddler [from birth through age 2] with disabilities.) IDEA is specific about who is to develop the IEP and what it must include. IEP Team Each IEP must be the product of the collaborative efforts of the members of an  IEP team, the membership of which is specified in IDEA as the following:
The term “individualized education program team” or “IEP Team” means a group of individuals composed of—
1.  The parents of a child with a disability

2.  not less than 1 regular education teacher of the child (if the child is, or may be, participating in the regular education environment);

3.  not less than 1 special education teacher, or where appropriate, at least 1 special education provider of the child;

4.  a representative of the local education agency who—
(i)  is qualified to provide, or supervise the provision of, specially designed instruction to meet the unique needs of children with disabilities;
(ii)  is knowledgeable about the general curriculum; and
(iii)  is knowledgeable about the availability of resources of the local education agency;

5.  an individual who can interpret the instructional implications of evaluation results, who may be a member of the team described in clauses (2) through (6);

6.  at the discretion of the parent or the agency, other individuals who have knowledge or special expertise regarding the child, including related service personnel as appropriate; and

7.  Whenever appropriate, the child with a disability. (PL 108-446, Sec. 614 [d][1][B])

IEP Components 

 Each IEP must include the following seven components:
1.  A statement of the child’s present levels of academic achievement and functional performance, including—
(a)  how the child’s disability affects the child’s involvement and progress in the general education curriculum;
(b)  for preschool children, as appropriate, how the disability affects the child’s participation in appropriate activities; and
(c)  for children with disabilities who take alternate assessments aligned to alternate achievement standards, a description of benchmarks or short-term objectives;

2.  A statement of measurable annual goals, including academic and functional goals, designed to—
(a)  meet the child’s needs that result from the child’s disability to enable the child to be involved in and make progress in the general education curriculum; and
(b)  meet each of the child’s other educational needs that result from the child’s disability;

3.  A description of how the child’s progress toward meeting the annual goals described in subclause (2) will be measured and when periodic reports on the progress the child is making toward meeting the annual goals (such as through the use of quarterly or other periodic reports, concurrent with the issuance of report cards) will be provided;

4.  A statement of the special education and related services and supplementary aids and services, based on peer-reviewed research to the extent practicable, to be provided to the child, or on behalf of the child, and a statement of the program modifications or supports for school personnel that will be provided for the child—
(a)  to advance appropriately toward attaining the annual goals;
(b)  to be involved in and make progress in the general education curriculum in accordance with sub-clause (1) and to participate in extracurricular and other nonacademic activities; and
(c)  to be educated and participate with other children with disabilities and non-disabled children in the activities described in this sub-paragraph;

5.  An explanation of the extent, if any, to which the child will not participate with nondisabled children in the regular class and in the activities described in sub-clause (4)(c);

6.  (a) a statement of any individual appropriate accommodations that are necessary to measure the academic achievement and functional performance of the child on State and district wide assessments consistent with section 612(a)(16)(A); and
(b) if the IEP Team determines that the child shall take an alternate assessment on a particular State or district wide assessment of student achievement, a statement of why—
(aa) the child cannot participate in the regular assessment; and
(bb)  the particular alternate assessment selected is appropriate for the child;

7.  The projected date for the beginning of the services and modifications described in subclause (4), and the anticipated frequency, location, and duration of those services and modifications. (PL 108-446, Sec. 614 [d][1][B])


IEPs for students age 16 and older must include information on how the child’s transition from school to adult life will be supported:   

8.  Beginning not later than the first IEP to be in effect when the child is 16, and updated annually thereafter—
(a)  appropriate measurable postsecondary goals based upon age appropriate transition assessments related to training, education, employment, and, where appropriate, independent living skills;
(b)  the transition services (including courses of study) needed to assist the child in reaching those goals; and
(c)  beginning not later than 1 year before the child reaches the age of majority under State law, a statement that the child has been informed of the child’s rights under this title, if any, that will transfer to the child on reaching the age of majority under section 615(m). (PL 108-446, Sec. 614 [d][1][A][i])

When developing a child’s IEP, the IEP team must consider the following factors:   

1.  General.    The IEP Team must consider
(i) the strengths of the child;
(ii) the concerns of the parents for enhancing the education of their child;
(iii) the results of the initial or most recent evaluation of the child; and
(iv) the academic, developmental, and functional needs of the child.

2.  Consideration of special factors.   The IEP Team must—
i.  In the case of a child whose behavior impedes the child’s learning or that of others, consider the use of positive behavioral interventions and supports, and other strategies, to address that behavior;
ii.  In the case of a child with limited English proficiency, consider the language needs of the child as those needs relate to the child’s IEP;
iii.  In the case of a child who is blind or visually impaired, provide for instruction in Braille and the use of Braille unless the IEP Team determines, after an evaluation of the child’s reading and writing skills, that instruction in Braille or the use of Braille is not appropriate for the child;
iv.  Consider the communication needs of the child, and in the case of a child who is deaf or hard of hearing, consider the child’s language and communication needs; and
v.  Consider whether the child needs assistive technology devices and services. (PL 108-446, Sec. 614 [d][3][A & B])

IEP Functions and Formats  

An IEP spells out where the child is, where she should be going, how she will get there, how long it will take, and how to tell if and when she has arrived. An IEP provides teachers and families with the  opportunity—and the responsibility—to first be realistic about the child’s needs and goals and then to be creative about how to meet them. Being realistic does not mean taking a pessimistic or limited view of the child’s current capabilities or potential to reach improved levels of academic achievement or functional performance; it means analyzing how specially designed instruction and related services can help the child get from her present levels of performance to future goals.  The IEP is also a measure of accountability for teachers and schools. Whether a particular school or educational program is effective will be judged, to some extent, by how well it is able to help children meet the goals and objectives set forth in their IEPs. Like other professionals, teachers are being called on to demonstrate effectiveness, and the IEP provides one way for them to do so. Although a child’s teacher and school cannot be prosecuted in the courts if the child does not achieve his IEP goals, the school  district is legally bound to provide the special education and related services identified in the IEP, and the school must be able to document that it made a conscientious and systematic effort to achieve those goals (Bartlett, Etscheidt, & Weisentstein, 2007; Wright, Wright, & O’Connor, 2010). IEP formats vary widely across school districts, and schools may exceed the requirements of the law and include additional information. Bateman and Linden (2006) cautioned against overreliance on standardized forms and computers for creating IEPs. “Forms by their very nature tend to interfere with true individualization. . . . [A] proper form will contain all the required elements in the simplest way possible, allowing for the most flexibility and creativity” (pp. 82–83).  Figure  2.3  shows portions of the IEP for Curt, a ninth grader and low achiever seen by the school district as a poorly motivated student with a disciplinary problem and a bad attitude. Curt’s parents see their son as a discouraged and frustrated student with learning disabilities, especially in written language.

IEP Problems and Potential Solutions 

Since its inception, the IEP process has been problematic. J. J. Gallagher (1984) wrote that the IEP is “probably the single most unpopular aspect of the law, not only because it requires a great deal of work, but also because the essence of the plan itself seems to have been lost in the mountains of paperwork” (p. 228). More than 20 years later, Bateman and Linden (2006) expressed a similar opinion: Sadly, many IEPs are horrendously burdensome to teachers and nearly useless to parents and children. Far from being a creative, flexible, data-based, and individualized application of the best of educational interventions to a child with unique needs, the typical IEP is “empty,” devoid of specific services to be provided, and its goals are often not measurable. (p. 87) Studies of actual IEPs seem to support such harsh descriptions. For example, Grigal and colleagues (1997) examined IEPs for high school students and found that transition-related goals included vague outcomes (e.g., “will think about best place to live,” “will explore jobs”), no evaluation procedures, and very few adaptations in activities or materials. Properly including all of the mandated components in an IEP is no guarantee that the document will guide the student’s learning and teachers’ teaching in the classroom, as intended by IDEA. Although most educators support the idealized concept of the IEP, inspection of IEPs often reveals inconsistencies between what is written on the document and the instruction that students experience in the classroom (S. W. Smith & Brownell, 1995).  Although IDEA requires parents to participate in IEP meetings and encourages student participation, research on parent and student involvement in the IEP process has produced mixed results (Test et al., 2004). In a study of 109 middle school and high school IEP meetings, Martin and colleagues (2006) concluded that students’ “presence can at best be viewed as tokenism because of the very low levels of student engagement and low student [expression of] opinions of their IEP meetings” (p. 197). On the bright side, numerous studies have shown that students with widely varying disabilities can learn to be actively involved in the IEP process, even to the point of leading the meeting (e.g., Arndt, Konrad, & Test, 2006; Kelley, Bartholomew, & Test, 2011; Martin, Van Dycke, et al., 2006). Some research suggests a positive correlation between students’ participation in the IEP process and academic achievement (Barnard-Brak & Lechtenberger, 2010). General education teachers also benefit from instruction in the IEP process. In a study of 393 middle school and high school IEP meetings, general education teachers rated themselves lower than all other IEP meeting participants, including students, on the extent to which they helped make decisions and knew what to do next (Martin, Huber Marshall, & Sale, 2004). General education teachers ranked second lowest (only to students) in knowing the reason for the meetings, talking at the meetings, feeling comfortable saying what they thought, understanding what was said, and feeling good about the meeting. Regardless of the level of parent and student participation, the appropriateness and measurability of the goals, and the IEP team’s satisfaction with the document, without instruction of the highest quality, many children with disabilities will make little progress. This reality led to the requirement in IDEA 2004 that teachers must use evidence-based practices (EBPs) to ensure their students receive the highest quality instruction. See Current Issues and Future Trends, “Evidence-Based Practice: Easier Said Than Done.”
Heward, William L. (2012-02-08). Exceptional Children: An Introduction to Special Education (10th Edition) (Page 60-63, 65-66). Pearson. Kindle Edition. 

If you have some other helpful information on IEPs feel free to share it in the comments :).

Thursday, March 13, 2014

How To Deal with Aggressive Behaviors in Children...

Ask Yourself: 

1. What happened prior to the event/behavior?
2. What noticeable physical signs did the child give?
3. What are the “Telltale signs?”
4. How do you respond to each child individually?

The States of Mind: 

1. The anxious state
2. The agitated state
3. The aggressive state
4. The assaultive state
5. The open state

The Anxious State: 


What Do You Look For?

• Be aware of each child’s individual cues.
• Telltale signs: Tears, blushing, clenching teeth, withdraw, whining, screaming etc.
• Feeling alone, confused, feeling conflicted.
• Children may say things such as “no one loves me, no one wants me, I’m no good, I don’t like it here” etc. • Our response can either take the child back to the competent state or they will move to the agitated state. 



How Do You Respond?

• Use door openers, gentle comments or questions.
• Ask open-ended questions.
• Validate and paraphrase the child’s thoughts and feelings.
• Reframe the child’s statements, making them more positive.
• Responding to the need within the child’s message.
• Pay attention to your tone of voice and your body language.

The Agitated State: 


What Do You Look For?

• If a parent/teacher does not respond to a child’s signs of anxiety a child’s behavior can move to agitation.
• There are 2 levels of agitated behavior: teaching response and limiting response.
• We need to understand the difference between the two before we respond.
• At the first level children are beginning to lose control, their strong emotions confuse their thinking and they don’t know how to handle their feelings. You can still respond at this level by teaching. At the second level the child is feeling antagonistic and no longer responds to what you are saying or doing.

2 Levels of Response


The Teaching Response: 

o Letting a child know their behavior is unacceptable and teaching what is acceptable.
o Be positive.
o The parents/teachers response should tell the child what TO DO, not what NOT to do.
o Use I-messages (I feel when you, not you make me )
o Avoid the Why questions.

The Limiting Response:

o Control is the issue here.
o At this stage a child can either move back to the competent state or go into an aggressive state.
o Education is no longer an issue, the issue is power.
o Your job is to create a win-win situation.
o Our goal at this level is to get children to stop, think and regain control.
o Two basic limiting responses: the interrupt or the options statement.
o The interrupt you interrupt what the child is doing/distract them in another way. An example a child is standing on the table and you get out a puzzle and talk aloud about how awesome the puzzle is and that you need someone to help you do the puzzle.
o The options statement is a ___ or ____ statement with the first part having what you want the child to do and the second half containing a consequence for not doing the first part. An example put away your toys or I will pick them up for you and they will be going away for the rest of the day.

The Aggressive State: 


What Do You Look For?

• The child is out of control.
• He or she doesn’t hear or understand anything you say.
• The behaviors are random.
• The actions aren't really directed at anyone.
• The aggression can be both verbal and physical.
• Reasoning no longer works.
• The child is driven by emotions.
• Have a goal in mind for this child at all times when he/she reaches this point.

How Do You Respond?

• You must use your non-verbal skills to communicate with the child and deescalate the behavior.
• The child is acutely aware of your physical presence and your body is your most useful tool. (don’t use your size to threaten!)
• Don’t let your emotions draw you into a power struggle. Stay calm!
• Distance yourself physically, don’t face the child directly and you might have to avoid eye contact.
• By doing these things, using your clear mind, your averted eyes just might surprise the child, interrupt his/her cycle and deescalate the behavior.

The Assaultive State: 


What Do You Look For?

• The child’s actions are no longer random.
• Even if you are not the cause of the behavior, you may become the target.
• This situation will require all of your verbal and non-verbal skills.
• Have an emergency plan that involves the others in the room.
• Be prepared to remove the other children or the child with the assaultive behaviors.
• Place yourself instead of other children in the room in her line of target.

 How Do You Respond?

• Have an emergency plan with other co-workers and if necessary with the other children in your classroom. • Practice this plan.
• Be prepared to move the other children because sometimes moving the child with the assaultive behaviors just adds fuel to the fire. 

The Open State:

• This is after a child is coming off an aggressive or assaultive state.
• This is a time for debriefing and for learning.
• The child will need some private time with you.
• Remember that the child is the focus and the child needs to do the talking.
• The child isn’t the only one who is vulnerable! Check your own emotions at this time too!

Simple techniques to help curb aggressive behaviors

Hands and feet on the wall.

o To do this, create a “safe spot” for the child with aggressive behaviors.
o Trace their hands and their feet and then laminate.
o Put their hands on the wall at their height and their feet on the floor.
o Any time they get aggressive tell them they can go stomp on their feet or press on their hands.
o If a child punches with a closed fist you may need to pad the wall.

Heavy lifting/weighted blankets

o Some children need to pick something up, move something, or have something heavy on their laps in order to concentrate.
o When using a weighted bucket give the child a specific task to complete. Not only does this give them a gross motor outlet but it allows the brain to concentrate on something else.
o Weighted blankets are good for children as well if they need help sitting still or keeping their hands to themselves.
o Deep tissue pressure works in some children.

Sensory boxes 

• Some children with aggressive tendencies benefit from time alone with a sensory box.
• In this box you will want items that:
o The child doesn’t have access to on a regular basis in the classroom
o Things that are just for that child o Things that are of different textures, sizes, shapes
o Items such as felt, a koosh ball, a tennis ball, cotton, fidget toys etc.
o Make the item personal for the child
• Some tools can be found here

Behavior modification techniques

• Visual cues and charts o Giving a child with aggressive tendencies visual cues or a visual chart to follow helps them to break the day down into small segments.

Transition puzzle

o To make a transition puzzle all you need is a piece of cardboard, like the bottom of a pizza box.
o Trace out the puzzle pieces and label each one a different transition that occurs on a daily basis that you want that child to master.
o As the child successfully completes the transition they get to add that piece of their puzzle.

*The book: Challenging Behavior in Young Children by Barbara Kaiser and Judy Rasminsky 2nd ed. was used as a guide*



Keys to becoming a parent/teacher who can handle the aggressive child (Dr. Becky Bailey, conscious Discipline)

• When a parent/teacher loses control NO ONE WINS.
• Parents/teachers should:
o Focus on what they want the child to accomplish
o Celebrate the child’s successes and choices
o See situations from the child’s perspective
o Creatively teach the child how to communicate
o Hold the child accountable for those teachings
• With two willing participants, power struggles escalate. Power struggles always require two willing participants!
• Help the child feel powerful!
• What you focus on you get more of!
• Whomever you have placed in charge of your feelings, you have placed in control of you!!! (this is HUGE as a parent/teacher)
• You are never upset for the reason you think you are.

Sunday, February 16, 2014

PDD-NOS a Fading Diagnoses?

What is the definition of pervasive developmental disorder-not otherwise specified and how was it considered different then autism spectrum disorder? What are the symptoms of pervasive developmental disorder-not otherwise specified? How prevalent is it? What is the age of onset? What causes it? What are the physical features? What are the treatments for pervasive developmental disorder-not otherwise specified? What does pervasive developmental disorder-not otherwise specified look like in the DSM-IV and what does it look like now in the DSM-V? Why where these changes made?

 Definition of PDD-NOS 


 PDD-NOS is Pervasive Developmental Disorder-Not Otherwise Specified. PDD-NOS and ASD are sometimes used interchangeably. Sometimes PDD-NOS is referred to as “subthreshhold autism” this can mean one of two things: One, the child does not have all of the characteristics. Two, they have mild symptoms (Autism Speaks Inc.). When saying my son had PDD-NOS it was often stated “oh so he has a mild form of autism” or “he is high functioning then”. I would try to explain that although those statements can be true, they are not always true with the diagnoses of PDD-NOS. When we went in he was hardly talking and was not very social with very little short eye contact, so he was not mild in those areas, but he did not have repetitive behaviors, so he was missing one of the three areas of diagnoses of classic autism. 

Symptoms, Prevalence and Age of Onset of PDD-NOS 


 “PDD-NOS is characterized by delays in development of socialization and communication skills. Parents may notice associated behaviors as early as infancy. These may include delays in using and understanding language, difficulty relating to people, unusual play with toys and other objects, difficulty with changes in routine or surroundings and repetitive body movements or behavior patterns” (Autism Speaks Inc.). “Some children with an ASD show hints of future problems within the first few months of life. In others, symptoms might not show up until 24 months or later. Some children with an ASD seem to develop normally until around 18 to 24 months of age and then they stop gaining new skills, or they lose the skills they once had. A person with an ASD might: not respond to their name by 12 months, not point at objects to show interest (point at an airplane flying over) by 14 months, not play "pretend" games (pretend to "feed" a doll) by 18 months, avoid eye contact and want to be alone, have trouble understanding other people's feelings or talking about their own feelings, have delayed speech and language skills, repeat words or phrases over and over (echolalia), give unrelated answers to questions, get upset by minor changes, have obsessive interests, flap their hands, rock their body, or spin in circles, have unusual reactions to the way things sound, smell, taste, look, or feel” (Centers for Disease Control and Prevention, 2013). “Children with these conditions [PDDs] often are confused in their thinking and generally have problems understanding the world around them” (WebMD, LLC).
These conditions are identified in children around the age of 3. This is why they are called developmental disorders because 3 and younger is when the most development occurs in a child. “The condition actually starts far earlier than age 3, but parents often do not notice a problem until the child is a toddler who is still not walking, talking, or developing in the ways other children of the same age are.” “The five types of PDD are: autism, aspergers syndrome, childhood disintegrative disorder, rett’s syndrome, and not otherwise specified” (WebMD, LLC).
The prevalence is 1 in 88 children in the US. In South Korea, using a different diagnoses process, it is 1 in 38. The process that South Korea uses picks up the 2/3 of the children who could be missed using the US diagnoses process (Autism Speaks Inc., 2014).

Cause of PDD-NOS 


“Investigators have already identified more than a dozen gene patterns associated with autism” (Wallis, 2009). Although all the causes are not known, there are many likely causes. There are many different factors that make children have a higher chance of having ASD: environmental, biologic, and genetic factors can all play a role. Scientists agree that genes are at the top of the list. “Children who have a sibling or parent with ASD are at a higher risk of having ASD. ASDs tend to occur more often in people who have certain genetic or chromosomal conditions”. 10% of children with ASDs also have Down syndrome, fragile X syndrome, Tuberous Sclerosis or other genetic and chromosomal disorders. The prescription drugs valproic acid and thalidomide have been linked with ASD when taken during pregnancy. Parenting practices do not cause ASDs. “The critical period for developing ASDs occurs before birth.” “However, concerns about vaccines and infections have led researchers to consider risk factors before and after birth. A small percentage of children who are born prematurely or with low birthweight are at greater risk for having ASDs.” (Centers for Disease Control and Prevention, 2013).

Physical Features 


“The face and brain develop in coordination, with each influencing the other, beginning in the embryo and continuing through adolescence. Now, University of Missouri researchers have found distinct differences between the facial characteristics of children with autism compared to those of typically developing children. This knowledge could help researchers understand the origins of autism. Aldridge and colleagues found the following distinct differences between facial characteristics of children with autism and those of typically developing children: Children with autism have a broader upper face, including wider eyes. Children with autism have a shorter middle region of the face, including the cheeks and nose. Children with autism have a broader or wider mouth and philtrum -- the divot below the nose, above the top lip. She says these are subtle differences that will enable researchers to further study people with autism spectrum disorders” (Missouri-Columbia., 2011)

Treatment 


The main treatment is behavioral therepy, but some children may need medications ot stabilze mood or behaviors (Encyclopædia Britannica, Inc.). Applied behavioral analysis (ABA) is used to bring about positive, long lasting changes in behavior through learning principles. “ Positive reinforcement is one such principle. When a behavior is followed by some sort of reward, the behavior is more likely to be repeated. Through decades of research,” many techniques have been developed “for increasing useful behaviors and reducing those that may cause harm or interfere with learning.” (Autism Speaks Inc., 2014)“Curriculum development is an individualized process that varies with each child (and his/her family).” “As Lord and Bishop (2010) point out, ‘One of the cardinal requirements of ABA involves collecting data on the progress of the individual and then changing the treatment plan if progress is not occurring.’” (Borden, 2011). “There is currently no cure for ASDs. However, research shows that early intervention treatment services can greatly improve a child’s development.” “Services can include therapy to help the child talk, walk, and interact with others.” (Centers for Disease Control and Prevention, 2013). “ Additionally, the National Research Council offered the following recommendations for Educating Children with Autism (NRC, 2001): Begin treatment early — as soon as a diagnosis of ASD is considered, actively engage the child with ASD in intensive instructional programming, year-round, for at least 25 hours/week, plan teaching opportunities for brief periods of time (15–20 minutes with young children) either one- to-one with an adult or in a small group (depending on individualized need), maintain a low student/teacher ratio (no more than two children with ASD per adult in a classroom), include a family component in programming and provide parent training, evaluate treatment interventions and assess the child’s progress on an ongoing basis to insure that his/her individualized needs are being met” (Borden, 2011).

What are the differences in DSM-IV and DSM-V and why was the change made?


“(DSM-IV), which was adopted formally in 1994, includes 5 subtypes of Pervasive Developmental Disorder (Autistic Disorder, Rett’s Disorder, Childhood Disintegrative Disorder, Asperger’s Disorder, and Pervasive Developmental Disorder — not otherwise specified). DSM V only lists ASD” (Borden, 2011). One of the reasons that they are making the change is if someone is recommended to get testing for autism they may dismiss it because they talk and have friends and don’t realize there are milder forms of autism. It also “replace[s] the old “you have it or you don’t” model of mental illness with the more modern view” that there are many degrees of severity. The other source of confusion that is addressed with this change is “’A child can look like they have P.D.D.-N.O.S., then Asperger’s, then back to autism,’ Dr. Lord said. The inconsistent use of these labels has been a problem for researchers recruiting subjects for studies of autism spectrum disorder” (Wallis, 2009). I completely understand the confusion of the changing diagnoses subgroups. At my son’s therapy there are two other children that are really similar to him and they have a lot of the same behavior and speech level. One of them is diagnosed with classic autism the other aspergers while my son is diagnosed with PDD-NOS with the note that it could be changed in the future when more testing is done. Dr. Lord, of Michigan, said the genetic markers [for autism] “don’t seem to map at all into what people currently call Asperger’s or P.D.D.” Nor have many of these genes been linked to distinct sets of symptoms. Until research can identify reliable biological markers for autism subtypes, Dr. Lord and other experts say, it is better to have no subtypes than the wrong ones” (Wallis, 2009).

Bibliography 


Autism Speaks Inc. (2014). Applied Behavior Analysis (ABA). Retrieved Febuary 10, 2014, from Autism Speaks: http://www.autismspeaks.org/what-autism/treatment/applied-behavior-analysis-aba

Autism Speaks Inc. (n.d.). PDD-NOS. Retrieved Febuary 10, 2014, from Autism Speaks: http://www.autismspeaks.org/what-autism/pdd-nos

Autism Speaks Inc. (2014). Prevalence Faq. Retrieved Febuary 10, 2014, from Autism Speaks: http://www.autismspeaks.org/what-autism/prevalence/prevalence-faq

Borden, M. C. (2011). Treating individuals who have autism: DSM-V, ABA, and beyond. The Brown University Child and Adolescent Behavior Letter , 27 (8), 1, 4-6.

Centers for Disease Control and Prevention. (2013, December 20). Facts About ASDs. Retrieved Febuary 10, 2014, from Centers for Disease Control and Prevention: http://www.cdc.gov/ncbddd/autism/facts.html

Encyclopædia Britannica, Inc. (n.d.). pervasive developmental disorder not otherwise specified (PDD-NOS). Retrieved Febuary 10, 2014, from Encyclopædia Britannica, Inc.: http://www.britannica.com/EBchecked/topic/1527231/pervasive-developmental-disorder-not-otherwise-specified-PDD-NOS

Missouri-Columbia., U. o. (2011, October 21). Autistic facial characteristics identified. Retrieved Febuary 10, 2014, from Science Daily: http://www.sciencedaily.com/releases/2011/10/111020105914.htm

Wallis, C. (2009, November 2). A Powerful Identity, a Vanishing Diagnosis. New York Times , 1-5.

WebMD, LLC. (n.d.). Pervasive Developmental Disorders (PDDs). Retrieved Febuary 10, 2014, from WebMD: http://www.webmd.com/brain/autism/development-disorder

Saturday, February 8, 2014

YouTube, Facebook and Pinterest

Posting, Uploading and Pinning.

I have been busy posting, uploading and pinning of all sorts lately. Pictures, videos and meme's galore. Josiah started swimming again and I got copies of all his under water videos and underwater pictures. 

Pinterest

Pinterest has all kinds of new memes posted to it. The pinterest posts links to the location on FB that the photo's are located for easy sharing on FB.

FaceBook

For facebook I organized the edited meme type pictures by:
Other Memes: which contain the non Josiah picture memes that I made.
Bible Quotes: Different quotes from the Bible with pictures of Josiah
Josiah Memes: Memes that I have used Josiah's picture for plus maybe a few other ones.

This is also where I make small updates/share funny things LM does and share pictures I take of him each day.
YouTube
This is where I have uploaded quite a few new videos: click the link for more than what is posted below.

Tuesday, January 14, 2014

Guest Blog Post From Sadie

This is the first guest blog post with more to come. This is a great way to see many more perspectives:

"One day you were born. Another day you smiled, babbled, hugged, kissed. Rolled, crept, sat, crawled. Laughed and played for daddy. One day you walked... and ran the same day. One day you said "hi", "mama", "daddy". Another day you didn't. One day your eyes were laughing, one day they wore shutters. Someone said "is she deaf?" One day I held you so long for just one look. One day your brother played peek-a-boo for me. One day he pointed. One day, week, month, year he smiled at you. Once you looked...another time you smiled...laughed...and tickled him!! One day he talked, potty trained, made friends. Some days you banged your head till it bruised. One day you ran so far so fast my heart stopped in time. Some days you listen to my voice. One day you finally played peek-a-boo with me. Some days you smile in the sun, jump, swing up to the sky, swim like a fish, ride the horse like a trapeze artist. Some days you do good at school and smile all day and your classmates take good care of you. One day you touched your dog and now you hang on. Some days you cry... all day...every day... at the hardness of this world. Today and every day you are daddy's princess. Some day someone will "find a cure". Which day will it be for you? Soon enough to matter? Or too late because you will already be perfect?

I wrote this once about my daughter. Some people hate the word cure, but I would take a “cure” in a heartbeat for my daughter’s autism because it traps her inside her nonverbal self and causes her pain. Our journey has included many therapies: Gluten free/Casein Free diet, chelation, Greenspan’s play therapy, horseback riding, swimming, sensory diet, school services since 2, speech therapy, service dog, psychiatric meds for bipolar and self harm, temporary residential placement, in home staff, sign language, PECS…..and ABA therapy with potty training! Most of all a trampoline, swings, and lots of music…all the time! None are perfect but all are steps in learning. Two things are most important for us. Faith in the redemption of all of this someday and learning to care for ourselves and the whole family in balance. Today we are in a good place. When she is stable my daughter is joyful, often interactive, sometimes affectionate, and always moving. She likes her brothers and pets. She has wild curls I would have died to have at her age. She is so beautiful. I want her to always be safe and happy. In the more immediate I want her new ipad to open up her world and her to be able to play in Special Olympics because she is good at shooting hoops!

These are just some bits and pieces of our life. Blessings to all."

Wednesday, July 10, 2013

What The....

*trigger warning if you have ever been sexually abused this might trigger old memories*

Sorry this blog post is not mainly about Josiah, the last paragraph is but unless you read the rest you probably will not get why I say, what I say in the last paragraph.

Like most people I have people on my friends list from high school and since their stuff pops up in my news feed I occasionally read them. Well, I once came across this "I stopped a girl from getting rapped today" then a comment how did you do that? "self control man, self control" was his reply back! To which the other person replied something to the point that he thought it was funny. Like really rape is funny. Needless to say this person was blocked from my list since my sister had said that he had posted something else a different time joking about rape and people were telling him it was not funny, yet he continues to do it. I seriously do not care what a women is wearing, she could be completely nude and that does not give a man the right to rape her. Neither does the women being his girlfriend or even his wife. No means, no! It should not need to be said more than once.

This kind of crap seriously ticked me off. Not only for the above reasons, but due to my past. Just a semi-quick overview that I have shared for classes that we had to discuss sexual abuse in and another where some classmates thought that we shouldn't have to do background checks on church nursery employees because they are members of the church(they figured if you are part of the church body you should be forgiven for all past mistakes, but in my eyes if someone sexually abuses children and even if they are saved again you do not put them in the nursery that would be like handing a past alcoholic a bottle of liqueur and just hoping he does not drink it-being saved does not make it so you no longer sin so why even take the chance with children), but I have never shared this to a vast range of people.

Here we go

As a child before I was even 8 I was molested (for those of you who do not know that term it means touch in a sexual way). I know it was only know it was sometime before I was 8 because I broke my leg then and the first time it happened was before that had happened. One of my mom's friend's husband had laid on top of both me and my middle sister. Fully clothed but none the less not something you do to a child. I will spare the great detail my brain still to this day holds of this moments and the others to come. Person number two was sometime after I broke my leg and was my youngest sister's father. He would come in nightly and kiss us (my middle sister and I goodnight) and would touch both of us under our clothes. Once I finally found out that this was happening to her too, I made a plan to tell my mom the next day. We did and he was arrested and we were brought in a courtroom which was so scary at a young age. Number three and four were teen boys, much, much older than I with the whole you touch me I touch you kind of crap. Number four was another mom's friend's husband and thankfully it was a failed and attempt (on multiple occasions), but he was latter arrested for molesting his step children. Then number one was still around and this time decided to molest me during a sleep over of all girls, while they slept so no clue how many people he touched then. Number five had hit me once and molested my top half with a if I touch you I won't touch your sister, (was only living with my middle sister by now, mom lost custody) so took one for saving her  from having to go through it. By now I was so full of hate. Some of these men,were supposedly "good Christian men". Go to church every Sunday involved in many parts of the church type of people. When I was eleven; so full of hate, distrust, and such great sadness a 16 yr old moved in\visited an apt we lived in a lot. I am sure he could see I hated the world and so the grooming began (now I do not mean hygiene. It is a term when a predator picks a target and begins to get them and or their family to trust them.) It first started with cards and movies with the family. Then bike rides, outings to the parks and other stuff. This was not his first rodeo, he knew what he was doing. He was more than likely taught by his father who although never came near me had been molesting/having sex~statutory rape with young girls for years. Eventually the I love you, I want to go out with you, I want to be your only one kind of lines came. At first, with no positive response, but sometime before I had turned twelve we started "dating" and loads of predators do the whole we are dating thing. Molesting soon began and I trusted him, thought someone truly cared. Now in the 5th grade my mom opted me out of sex ed (I am all for early sex ed). Well, wish I was not. Maybe that would have made a difference, but maybe not. Sometime soon after I turned twelve my virginity was lost which I regretted the decision before, during, after; just felt I had no choice. If you want to think every girl who loses their virginity at twelve is a slut then I am sorry you have such a twisted mind (sadly this has been said about me). This "relationship" lasted over FIVE years. When I was sixteen and made the decision that waiting for marriage for sex was a better thing to do (which was hard to do since he was emotionally abusive), he took what he wanted from me anyways. I forgave him and reasons we were dating and I shouldn't expect him to go from almost daily, to no more. Yes, I was basically raped daily with some exceptions of times when he was gone from (age wise statutory rape and I never did give true consent ever-felt guilt and shame every time as if I was doing something wrong and it ate away at me) twelve to sometime after I was sixteen. This relationship if I must call it that was soon ended with a threat to my life. Details of how a later met hubby is in a past post, so won't re explain.

Today

I have not been and still not that great at trusting people, so sorry to some if you want to call me cold or bitter (yes, I have been called cold and bitter). Which are words I honestly wouldn't use to describe myself. I have worked hard not to let my past rule my present and my future. It is just really hard at times to trust completely. My hubby has my trust, but few people beyond that. Even something as simple as hugging is sometime difficult for me. I have been working on that so much though. Dating Jason, getting married and then having Josiah has helped me overcome much of my past; Although, this was extremely difficult in many ways. I also have had the hardest time wearing skits since I was rapped in a skirt. It has taken forever to be able to wear skits and dresses again and even now I still wear shorts or leggings underneath even if they are ankle length dresses. I even had the worst time getting over touching Josiah's diaper area enough to do needed creams or wiping. Oh and then breastfeeding and even in public (took a lot to get courage to do this-wonder why I feel so strongly about it now?, I have gained my body back through my choices!-I do if for he best of my child and not to just show off). I will strive to teach him to be a better man then almost all of them in my life and hopefully no cycle will be continued with him. I will fight as hard as I can to protect him from predators and will fight to get any sentenced if they decide to over step their bounds (hubby has much harsher words and feelings on what would happen)! I have been working on this post for a while and having a hard time even pushing the publish button, but I have learned before that through great tragedy comes great things! Like a phoenix rising born out of the ashes.